The bag in the back of the van held potentially needed items, the just-in-case necessities. Towels, first aid kit, sunscreen, bug spray, extra sunglasses, baseball caps, you get the idea. Nothing specific planned for these items, but one never knows. We might stop at a park, and someone might get muddy; we might find ourselves…
My love of all things random is not necessarily random. It is in part a silent rebellion, an effort not to be defined by one single part of my story, allowing me to embrace the stories fully as they come, following the twists and turns in this journey of life. Many parts make up the…
January is more than just the beginning of a new year for me; it brings with it the anniversary of my journey with Multiple Sclerosis. This journey with Chronic Illness now traveled for two years. While some anniversaries (such as my wedding anniversary, which also falls in January) cause celebration, others bring up deep grief….
Living with a chronic debilitating disease like Multiple Sclerosis tends to lend itself to, what if, kind of thinking. With unknowns around how my body will change due to its progression and nothing to show that one treatment course will work, a lot is trial and error. Some disease-modifying therapies work for some patients while…
“Life is a chronic illness”, says author and podcaster Kate Bowler. On the one hand, we can hear that and think, “wow, that’s a depressing way to look at life.” On the other hand, as someone living with a chronic illness, I can relate to the intent behind Kate’s statement. We live in a world…
Flexibility is not a word naturally associated with planning. Yet just like other opposites, these words can co-exist and do co-exist nicely together. When we are worried only about ourselves, it’s pretty easy to make a plan and stick to a schedule. Add a spouse, and there can be an adjustment period, attempting to figure…
